Sun, 10 Apr 2005
|
Our Guestbook
Write any comments that you would like to share.
Posted 18:07
|
15 comments
|
Inspiring...
Thanks to Nick for sharing this webpage with me.
I am inspired to hear about Jacob's life story
thus far and look forward to hearing about his
success' as he grows-up.:)
|
We are taking our three grandchildren to the HyVee on 23rd st.
in Independence after church today....as we feel they need to be
aware of those children around them who have health concerns
and learn that through our donations, those children can be
helped.
|
Thank you for sharing Jacob's story
Dear Mark & Cheryl - my grandson, Benjamin
Brewer, was diagnosed with
Neuroblastoma, Stage IV high risk but not
amplified, in February, 2004. He
was 2 1/2 years old at the time. We had never
heard of Neuroblastoma. I
started searching the internet to find out what
this monstrous disease was
really like. The very first night, I came
across Jacob's story. I
made copies of it to give to my daughter and son-
in-law to read to bolster
their hopes. I kept a copy of it with me all
the time. It gave me some
idea of what to expect from the treatments and a
great deal of hope that
Benjamin would survive this horrible disease.
If Jacob had survived, then
there was hope that Benjamin would survive.
I've read every news
article that my google searches turn up
regarding Jacob. It appears that
he is not only surviving, he's thriving. And so
is our Benjamin. Today he
had his broviac catheter removed. Treatment is
finished and he is NED.
Benjamin was placed on Protocol A-3973 for
treating high risk Neuroblastoma.
We learned that Ben would have to endure six
rounds of chemotherapy, surgery
to resect his primary tumor, an antilogous stem-
cell transplant, radiation
therapy, and a six-month course of 13 cis-
retinoic acid (Accutane). He did
participate in the antibody study ch14.18 at
Children's Hospital in
Columbus. I just wanted to let you know that
your story gave me hope from the very
first night, that Benjamin would survive. I
read your story and prayed
every day and at every crisis - and you know
there were many. Thank you
for sharing your family's nightmare with all of
us Neuroblastoma families.
It helped us survive our own nightmare. May God
hold all of our precious
survivors in His hands and keep them safe.
Perhaps you get many emails like this one. I
hope you do because you should
know how much you are helping the rest of us.
May God bless us all, Pat Washburn
|
Thank you
You are a shining star in this dark world of Neuroblastoma. Our son
was diagnosed in 2/04 at stage IV and has gone through many of
the same treatments you have. Thank you for providing us with
hope! Ben is currently NED and we are hopeful that he will remain
cancer-free! Visit us at www.benbrewer.org.
|
GREAT website!!!
Hi guys!
Everytime I see a picture of Jacob I can't help
but think how much he and Daniel look a like!
Wow!
I will never forget coming upon Mark's article
shortly after Daniel was diagnosed back in 2001,
and the HOPE that filled my heart when I read it.
And boy did we need some hope!
We will also never forget how incredibly helpful
you both were to us --many, many times.
You truly helped us get through those days.
We are forever grateful to you!
This is such a great website!
We will check back often and keep in touch!
Wishing you all continued blessings and good
health in 2006!!
Jacob you are a true inspiration!
With Love,
The Hammer's
|
Partners in the Cause
Mark and Cheryl,
Thank you so much for sharing this information
and for connecting our St. Baldrick's event May
17th to these wonderful children and their
families. I look forward to having your
participation in our event and am excited to
help with Alex's Lemonade Stand this year as
well. Take care!
|
Thank you everyone for viewing this site!
|
good luck!!!!!!!
hey just going through different sites of cancer
sites.well good luck and i wish you the best
kara<3333
|
Thank you
Thank you for seeking us out. I look foward to
learning more about your family and all the
great things you are doing to fight the beast.
www.brenda-chad.blogspot.com
|
win the fight!
http://imagehost.vendio.com/a/7913263/aview/Chane
l_Quilted_Black_Cotton_Strap_Top___1.jpg
|
(none)
I hope that jacod gets better everyday
|
Hi,
I am the Dad of AJ, a 14 year old cancer victim.
I wanted to make you aware (maybe again) and
enlist your help for the <a
href=http://www.thepetitionsite.com/1/CureChildhoodCancer>Cure
Childhood Cancer petition!</a> The GREAT news is
that <b>CureSearch, LIVESTRONG and Alex’s Lemonade
Stands have ALL written about the Petition </b>on
their websites! And TX Children’s and DUKE have
both allowed us to setup paper versions inside the
hospitals! WE ARE MAKING HEADWAY and are at over
<b>11,000 signatures</b>! But we need your help
again. If you can please make your readers
aware, email it around again, and give just a
little publicity, I think we can make this happen!
Thanks again,
AJs Dad
http://www.thepetitionsite.com/1/CureChildhoodCancer
|
HELP ST. JUDE BY CREATING A PEPPER AT CHILI'S TO FIGHT CHILDHOOD CANCER!!!!
HELP ST. JUDE BY CREATING A PEPPER AT CHILI'S TO
FIGHT CHILDHOOD CANCER!!!!
St. Jude Children’s Research Hospital and
Chili’s Grill & Bar® announced the kick-off of
their fifth annual Create-A-Pepper to Fight
Childhood Cancer campaign. Now through September
30, Chili’s restaurants around the country and,
for the first time, in Puerto Rico, are marking
National Childhood Cancer Awareness Month by
inviting people to get creative and raise funds
to help St. Jude find cures and save children
with cancer and other catastrophic childhood
diseases.
Guests at participating Chili’s restaurants can
contribute to St. Jude in multiple ways:
- Make a donation to St. Jude and receive a
Create-A-Pepper chili pepper coloring sheet
designed for display at restaurants during the
month.
- Purchase Create-A-Pepper T-shirts that can be
customized with permanent marker.
- Buy a customized Create-A-Pepper key that can
be cut for use at home or the office.
- Eat at Chili’s on Monday, Sept. 29, when
Chili’s will donate 100 percent of profits from
participating restaurant sales to St. Jude.
Visit www.createapepper.com and to make an
online donation.
PASS IT AROUND!!!!
GET YOUR FRIENDS/FAMILY TOGETHER!!! TRUST ME ITS
SUCH AN AMAZING CAUSE :)
CONTACT ME AT WWW.MYSPACE.COM/CINDY9584
|
A Good Read
Hey, really good site and best of luck!
I received a children's book in the mail that
helps children come to terms with a parents
cancer. It's aimed at younger children and is
both thoughtful , warm-hearted and even get’s
the kids to help out more around the house. The
author Linda McCowan is also the illustrator and
you can buy her book "Cancer Rhymes with Dancer"
by going to her website at
http://www.cancerrhymeswithdancer.com.
My kids read it and loved the illustrations,
several which are shared on that author’s site.
Mel Wilson
|
Hello
Greetings to you,
With Due Respect and Humanity, I was compelled
to write to you under a
humanitarian ground.My name is Olivier
Sosnitskaya from Russia, I am
married to Mr. Steven Sosnitskaya a director of
an Oil firm in Russia
. We were married for few years without a child
afterwhich he died of a
Cardiac Arteries Operation. Recently, my doctor
told me that I would
not last for the next six months due to my
cancer problem (cancer of
the liver and stroke). As a result of this I
wish to donate 6.9 million
american dollars which my late husband has left
in a finance house
before he passed away. I have decided to donate
this fund to an
honestand responsible person anywhere or
anyplace who understands and
feels the pain of the lonely one suffering from
this deadly disease
called cancer. So I am sending out this message
massively to actually
know how you can utilize this funds for the
purpose.
The purpose for the money is to support the less
priviledged people,
orphanages, widows and more especially the
cancer affected people in
hospital or at home who may not be able to
afford their medical bills.
I took this decision because I do not have any
child that will inherit
this fund, and I do not want in away where this
money will be used in
an ungodly way. This is why I am taking this
decision to hand you over
this Fund. I am not afraid of death hence I know
where I am going. I
want you to always remember me in your daily
prayers .
Write back as soon as possible any delay in
your reply
will give me room in sourcing another person for
this same purpose.
Hoping to read from you ASAP.
God bless you as you listen to the voice of
reasoning,
Yours Sister in Christ
Mrs Olivier Sosnitskaya
|
Post a Comment:
|
|
|
