Sun, 10 Apr 2005
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Posted 18:07
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12 comments
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Inspiring...
Thanks to Nick for sharing this webpage with me.
I am inspired to hear about Jacob's life story
thus far and look forward to hearing about his
success' as he grows-up.:)
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We are taking our three grandchildren to the HyVee on 23rd st.
in Independence after church today....as we feel they need to be
aware of those children around them who have health concerns
and learn that through our donations, those children can be
helped.
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Thank you for sharing Jacob's story
Dear Mark & Cheryl - my grandson, Benjamin
Brewer, was diagnosed with
Neuroblastoma, Stage IV high risk but not
amplified, in February, 2004. He
was 2 1/2 years old at the time. We had never
heard of Neuroblastoma. I
started searching the internet to find out what
this monstrous disease was
really like. The very first night, I came
across Jacob's story. I
made copies of it to give to my daughter and son-
in-law to read to bolster
their hopes. I kept a copy of it with me all
the time. It gave me some
idea of what to expect from the treatments and a
great deal of hope that
Benjamin would survive this horrible disease.
If Jacob had survived, then
there was hope that Benjamin would survive.
I've read every news
article that my google searches turn up
regarding Jacob. It appears that
he is not only surviving, he's thriving. And so
is our Benjamin. Today he
had his broviac catheter removed. Treatment is
finished and he is NED.
Benjamin was placed on Protocol A-3973 for
treating high risk Neuroblastoma.
We learned that Ben would have to endure six
rounds of chemotherapy, surgery
to resect his primary tumor, an antilogous stem-
cell transplant, radiation
therapy, and a six-month course of 13 cis-
retinoic acid (Accutane). He did
participate in the antibody study ch14.18 at
Children's Hospital in
Columbus. I just wanted to let you know that
your story gave me hope from the very
first night, that Benjamin would survive. I
read your story and prayed
every day and at every crisis - and you know
there were many. Thank you
for sharing your family's nightmare with all of
us Neuroblastoma families.
It helped us survive our own nightmare. May God
hold all of our precious
survivors in His hands and keep them safe.
Perhaps you get many emails like this one. I
hope you do because you should
know how much you are helping the rest of us.
May God bless us all, Pat Washburn
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Thank you
You are a shining star in this dark world of Neuroblastoma. Our son
was diagnosed in 2/04 at stage IV and has gone through many of
the same treatments you have. Thank you for providing us with
hope! Ben is currently NED and we are hopeful that he will remain
cancer-free! Visit us at www.benbrewer.org.
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GREAT website!!!
Hi guys!
Everytime I see a picture of Jacob I can't help
but think how much he and Daniel look a like!
Wow!
I will never forget coming upon Mark's article
shortly after Daniel was diagnosed back in 2001,
and the HOPE that filled my heart when I read it.
And boy did we need some hope!
We will also never forget how incredibly helpful
you both were to us --many, many times.
You truly helped us get through those days.
We are forever grateful to you!
This is such a great website!
We will check back often and keep in touch!
Wishing you all continued blessings and good
health in 2006!!
Jacob you are a true inspiration!
With Love,
The Hammer's
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Partners in the Cause
Mark and Cheryl,
Thank you so much for sharing this information
and for connecting our St. Baldrick's event May
17th to these wonderful children and their
families. I look forward to having your
participation in our event and am excited to
help with Alex's Lemonade Stand this year as
well. Take care!
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Thank you everyone for viewing this site!
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good luck!!!!!!!
hey just going through different sites of cancer
sites.well good luck and i wish you the best
kara<3333
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Thank you
Thank you for seeking us out. I look foward to
learning more about your family and all the
great things you are doing to fight the beast.
www.brenda-chad.blogspot.com
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win the fight!
http://imagehost.vendio.com/a/7913263/aview/Chane
l_Quilted_Black_Cotton_Strap_Top___1.jpg
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(none)
I hope that jacod gets better everyday
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Hi,
I am the Dad of AJ, a 14 year old cancer victim.
I wanted to make you aware (maybe again) and
enlist your help for the <a
href=http://www.thepetitionsite.com/1/CureChildhoodCancer>Cure
Childhood Cancer petition!</a> The GREAT news is
that <b>CureSearch, LIVESTRONG and Alex’s Lemonade
Stands have ALL written about the Petition </b>on
their websites! And TX Children’s and DUKE have
both allowed us to setup paper versions inside the
hospitals! WE ARE MAKING HEADWAY and are at over
<b>11,000 signatures</b>! But we need your help
again. If you can please make your readers
aware, email it around again, and give just a
little publicity, I think we can make this happen!
Thanks again,
AJs Dad
http://www.thepetitionsite.com/1/CureChildhoodCancer
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